April 17, 2013 | Press Release
WASHINGTON, DC – The U.S. House Energy and Commerce Committee today passed the Helping Sick Americans Now Act (H.R. 1549) by a vote of 27 to 20. The legislation, introduced this week by Health Subcommittee Chairman Joe Pitts (R-PA) and Vice Chairman Michael C. Burgess, M.D. (R-TX), along with Rep. Ann Wagner (R-MO), would immediately help provide health care coverage to individuals with pre-existing health conditions.
April 17, 2013 | Letter
To read a letter signed by the rare disease patient community organizations, click here. 
April 16, 2013 | Press Release
WASHINGTON, DC – The Oversight and Investigations Subcommittee, chaired by Rep. Tim Murphy (R-PA), today held a hearing to examine the deadly meningitis outbreak, which has resulted in 53 lost lives and over 700 individuals sickened.
April 16, 2013 | Letter
To read the March 5, 2013 letter to FDA, click here. To read FDA's April 16, 2013, response, click here.
April 16, 2013 | Press Release
WASHINGTON, DC – The Subcommittee on Energy and Power, chaired by Rep. Ed Whitfield (R-KY), today advanced a bipartisan legislative solution to eliminate the bureaucratic hurdles blocking construction of the Keystone XL pipeline and allow this landmark jobs and energy project to move forward. H.R. 3, the Northern Route Approval Act, authored by Rep.
April 16, 2013 | Press Release
WASHINGTON, DC – Health Subcommittee Chairman Joe Pitts (R-PA) and Vice Chairman Michael C. Burgess, M.D. (R-TX), along with Rep. Ann Wagner (R-MO), this week introduced the Helping Sick Americans Now Act (H.R. 1549), which would immediately help provide health care coverage to individuals with pre-existing health conditions.

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