Good afternoon, Chairman Bilirakis, Ranking Member Brown, and members of the
Health Subcommittee. Thank you for allowing me to appear before you today.
My name is Nada L. Stotland, M.D. I hold Doctor of Medicine and Master of
Public Health degrees and have been a practicing psychiatrist for more than 25
years. Currently, I have a private clinical practice and am also Professor of
Psychiatry and Professor of Obstetrics and Gynecology at Rush Medical College. I
have devoted most of my career to the psychiatric aspects of women's
reproductive health care.
I speak today on behalf of the American Psychiatric Association (APA), where
I presently serve as an elected member of the Board of Trustees. APA is the
medical specialty society representing more than 35,000 psychiatric physicians
nationwide. Our members are on the front lines of treating mental illness across
the country. They serve as clinicians, academicians, researchers, and
administrators. I also speak today as a Board member of Physicians for
Reproductive Choice and Health (PRCH), which represents more than 6,300
physician and non-physician members nationally. PRCH is a national
not-for-profit created to enable concerned physicians to take a more active and
visible role in support of universal reproductive health. PRCH is committed to
ensuring that all people have the knowledge, access to quality services, and
freedom of choice to make their own reproductive health decisions.
By way of personal background, my interest began with the psychology of
pregnancy, labor, and childbirth. I gave birth to four wonderful daughters, now
adults, and I was determined that their births be as safe as possible. I studied
methods of prepared childbirth, used them, and became the Vice President of the
national Lamaze prepared childbirth organization.
I commend the Subcommittee for holding this important hearing and for
attempting to keep the focus on a general discussion of post pregnancy mental
health in women. Let me say at the outset that I appreciate the Chairman's
stated hope that we can explore the frank differences between some of the
witnesses with a mutually respectful examination of the facts.
Before I begin my testimony, I want to take a brief moment to say that I was
delighted to meet with my Congressman - Representative Bobby Rush - before
today's hearing, and I was pleased to have been invited by Representative Rush
to speak before the Congressional Black Caucus symposium on postpartum
depression in 2001. I greatly appreciate his leadership on this vital issue,
particularly with respect to the impact of untreated depression in minority
populations, including minority women. This is an important and sorely neglected
issue.
Mental Health Issues and Women:
Before focusing on post-pregnancy depression, it would be useful to discuss
some general issues related to women's mental health. Burt and Hendrick,
writing in their "Concise Guide to Women's Mental Health," put it
succinctly, noting that "Women use more health care services than any other
group in the United States. They make more visits to doctors' offices than do
men, fill more prescriptions, have more surgeries . . . and spend two out of
every three health care dollars."
Specific gender differences in the prevalence of mental illnesses in the
United States are well recognized. This is true of prevalence rates for some
disorders, but also in the way in which some disorders present at the diagnostic
interview, and also in comorbidities. For example, not only are depression and
dysthymia (a chronic form of depression) more common in women than men, but both
are more likely to be accompanied by anxiety disorders in women than men. And
the features of psychiatric illnesses present in women are likely to be
different than when present in men.
The landmark Surgeon General's Report on Mental Health, issued by
then-Surgeon General David Satcher, M.D., in 1999, provides much valuable
information. Anxiety disorders (panic disorder, phobias, obsessive compulsive
disorder, panic disorder, PTSD, etc.) are the most prevalent disorders in adults
and are found twice as often in women as in men. Panic disorder is about twice
as common among women as men, with the most common age of onset between late
adolescence and mid-adult life. In the general (non-military) population, the
one-year prevalence rate of posttraumatic stress disorder is about 3.6 percent,
with women accounting for nearly twice the prevalence as men. The highest rates
of PTSD are found among women who are the victims of crime, especially rape.
Mood disorders take a huge toll in the form of human suffering, lost
productivity and suicide. They rank among the top ten disabling conditions
worldwide. The most familiar mood disorders include major depression, dysthymia
and cyclothymia (alternating depression and manic states that do not rise to the
level of bipolar disorder). Again, with the exception of bipolar disorder, mood
disorders are twice as common in women as in men, and in the case of seasonal
affective disorder (depression occurring in the late fall and winter), seven
times more common in women than men. Victims of domestic violence (an estimated
8 to 17 percent of women in the United States each year) are at increased risk
for mental health problems. The mental health problems of domestic violence
include depression, anxiety disorders including as noted PTSD, eating disorders,
substance abuse and suicide.
Few would doubt the huge impact of depression alone on society and on the
economy. Major depression is a seriously debilitating illness. Depressed persons
see their physicians more often than others, and misdiagnosed depression can
lead to extensive, expensive diagnostic tests (with obvious implications for
health care costs). The most serious consequence of untreated depression is
suicide. Major depressive disorders account for up to one-third of all deaths by
suicide. While men in the U.S. commit suicide four times as often as women,
women attempt suicide four times as often as men.
Time does not permit a more detailed discussion of gender-based differences
in the prevalence, course and treatment of mental disorders in women. I hope
this brief summary helps frame the questions before you today: What do we know
about post-pregnancy depression? and What can we do about it?
The Importance of the Diagnostic and Statistical Manual of Mental
Disorders (DSM):
Psychiatrists and other mental health professionals depend on accurate
diagnostic tools to help them identify precisely the mental illnesses their
patients suffer, an essential step in deciding what treatment or combination of
treatments the patient needs. The Diagnostic and Statistical Manual of Mental
Disorders (or DSM) has become a central part of this process. DSM is, simply,
the internationally-recognized standard for the diagnosis of mental disorders.
As such, it provides the most comprehensive diagnostic framework for defining
and describing mental disorders. DSM-IV is embodied in over 650 state and
federal statutes and regulations.
The DSM-IV is based on decades of research and was developed through an open
process involving more than 1,000 national and international researchers and
clinicians drawn from a wide range of mental and general health fields. The
special 27-member DSM-IV Task Force worked for five years to develop the manual
in a process that involved 13 work groups, each of which focused on a section of
the manual. I myself was a member of the work group addressing late luteal phase
dysphoric disorder, or premenstrual dysphoric disorder, as it came to be known.
The work groups and each of their advisory groups of 50 to 100 individuals
developed the manual in a three-step process.
The first step in the three-stage empirical review was the development of 150
reviews of the scientific literature, which provided the empirical database upon
which DSM-IV decisions could be made. In the second step, task force work groups
reanalyzed 50 separate sets of data which provided additional scientific
information to that available in the published literature. Finally, the task
force conducted 12 field trials with funding from the National Institute of
Mental Health, National Institute on Drug Abuse, and the National Institution of
Alcoholism and Alcohol Abuse, involving more than 88 sites in the United States
and internationally and evaluations of more than 7,000 patients. As you can see,
the DSM-IV is based on systematic, empirical studies.
The DSM-IV's codes are in agreement with the International Classification
of Diseases, Ninth Edition, Clinical Modification (ICD-9-CM). ICD-9-CM is based
on the ICD-9, a publication of the World Health Organization, used worldwide to
aid in consistent medical diagnoses.
The DSM-IV's codes often are required by insurance companies when
psychiatrists, other physicians and other mental health professionals file
claims. Even the Centers for Medicare and Medicaid Services (CMS) require mental
health care professionals to use the DSM codes for the purposes of Medicare
reimbursement.
DSM and Depression and Psychosis:
One of the more unfortunate aspects of our culture is that we tend to toss
around diagnostic criteria in commonplace language. We say, for example, that a
student who gets a "C" on a mid-term is "depressed," or that someone who
is acting in an agitated way is "psychotic." Doing so underscores the lack
of understanding and the stigmatic way in which we approach serious illnesses
that happen to be mental illnesses. For purposes of today's hearing it may be
useful to briefly discuss depression and psychosis in the context of the DSM.
Depression: When used to describe a mood, the word "depression" refers to
feelings of sadness, despair, and discouragement. As such, depression may be a
normal state of feelings which any person could experience from time to time.
"Depression" is also a clinical and scientific term, and in these contexts
may refer to a "symptom" seen in a variety of mental or physical disorders,
or it may refer to a "mental disorder" itself. DSM-IV classifies depression
by severity, recurrence, and association with mania.
Psychosis: Psychosis is part of a severe mental disorder and is characterized
by a person's gross impairment in perceiving reality. A psychotic person may
be delusional or may experience hallucinations, disorganized speech, or
disorganized or catatonic behavior. Psychosis may show up, for example, in
patients who are suffering from schizophrenia, delusional disorders, and some
mood disorders including manic-depression or bipolar disorder.
Postpartum Psychiatric Disorders:
I was asked to focus most of my testimony on the question of post-abortion
depression and psychosis, which I will do. Although others have addressed
postpartum disorders, let me briefly talk about them. Mental disorders following
childbirth was first mentioned over 400 years before the birth of Christ, by
Hippocrates, who described the case of a woman in Cyzicus who "gave birth with
difficult labor," became sleepless and wandered at night, eventually suffering
great distress before becoming rational again.
Today we know from research that disturbances can occur in the postpartum
period in the form of "baby blues," or more seriously as postnatal
depression or psychosis. Onset of baby blues occurs within days of delivery and
can impact a significant number (some suggest 28 to 80 percent) of mothers
across cultures. Features include emotional lability unrelated to past history,
but the disorder is self-limited. Women with baby blues benefit from reassurance
that the symptoms are common and will quickly disappear, but should be advised
to seek help if symptoms are severe or persist for more than two weeks.
Postpartum depression is an affective disorder lasting more than two weeks,
typically with an onset beginning two to four weeks postpartum, the severity of
which meets criteria for DSM-IV designation. Special attention to postpartum
depression is warranted because - in addition to the impact on maternal health
and mental health - it increases the risk of negative parenting behaviors and
puts children at risk for adverse outcomes in social, emotional, and behavioral
development. Many cases are missed because new mothers are discharged so quickly
from the hospital, and thereafter most care is provided by physicians focused on
the care and wellness of the infant. The literature shows risk factors including
a previous history of depression, particularly depression occurring antepartum.
Postpartum psychoses are psychotic disorders arising after childbirth. These
are acute, severe illnesses occurring after one or two of every 1,000 births.
Symptoms include mood lability, severe agitation, confusion, thought
disorganization, hallucinations and sleeplessness. Most researchers believe that
postpartum psychosis is a manifestation of bipolar disorder. These episodes of
psychotic illness are triggered by the biologic and psychological stresses of
pregnancy and delivery. The results of misdiagnosed psychosis occurring
postpartum or lack of access to effective treatment can be, frankly, horrific,
with some mothers committing infanticide followed (in up to 62 percent of the
cases) by suicide. Sadly, several such cases have occurred among Representative
Rush's constituents.
One important factor in responding appropriately to postpartum disorders is
to call attention to their existence. New mothers need to understand the
difference between "the blues" and feelings of overwhelming and persistent
sadness. Physicians can help by preparing their patients with some reassuring
but straight talk about the fact that childbirth and new parenthood can indeed
be stressful and reactions to motherhood can't always be predicted. Peripartum
emotional support is important; families should be included in education
efforts, assessment of possible risks, and in the provision of supports. In
particular, efforts by policymakers to call attention to the problem are most
welcome and helpful.
"Post-Abortion Depression and Psychosis:"
Advocates of a created designation of "post-abortion depression and
psychosis" typically argue without foundation that abortions can have a
long-term impact on the mental health of women who elect to terminate a
pregnancy. Alleged symptoms include recurring sadness, persistent feelings of
guilt and a host of other factors including eating disorders, substance abuse,
suicidal ideation and promiscuity, to name a few.
In fact, the vast majority of women have abortions without psychiatric
sequelae, or secondary, consequences. A study of a national sample of more than
5,000 women in the U.S. followed for eight years concluded that the experience
of abortion did not have an independent relationship to women's well-being.
The most powerful predictor of a woman's mental state after an abortion is
her mental state before the abortion. The psychological outcome of abortion is
optimized when women are able to make decisions on the basis of their own
values, beliefs and circumstances, free from pressure or coercion, and to have
those decisions, whether to terminate or continue a pregnancy, supported by
their families, friends and society in general.
As a practicing psychiatrist, I have seen a 15-year-old girl who was pregnant
as a result of being raped by a family friend, her grades falling and depression
descending as she and her mother sought funds to pay for an abortion to avoid
compounding the trauma of the assault. I have seen a young woman who had an
abortion in her teens without support from family or friends, and who did not
have the opportunity to talk about her feelings until entering psychotherapy for
other reasons later in her life. There, she concluded that the decision had been
painful but correct and went on to have and cherish several healthy children. I
worked with a woman who had an abortion early in her life and had to come to
grips, decades later, with the fact that she might never have a child, and in
the process, reaffirmed that she had made the right decision when she was
younger.
My professional experience reflects the scientific findings: women do best
when they can decide for themselves whether to take on the responsibility of
motherhood at a particular time, and when their decisions are supported. No one
can make the decision better than the woman concerned. Mental illnesses can
increase the risk of unwanted pregnancy, but again, abortion does not cause
mental illness.
President Ronald Reagan appointed C. Everett Koop, M.D., as the Surgeon
General of the United States and asked him to produce a report on the effects of
abortion on women in America. Dr. Koop was known to be opposed to abortion, but
he insisted upon hearing from experts on all sides of the issue. The American
Psychiatric Association assigned me to present the psychiatric data to Dr. Koop.
I reviewed the literature and gave my testimony. Later, I went on to publish two
books and a number of articles based upon the scientific literature.
Dr. Koop, though personally opposed to abortion, testified that "the
psychological effects of abortion are miniscule from a public health
perspective." It is the public health perspective which with we are concerned
in this hearing, and Dr. Koop's conclusion still holds true today.
Despite the challenges inherent in studying a medical procedure about which
randomized clinical trials cannot be performed, and despite the powerful and
varying effects of the social milieu on psychological state, the data from the
most rigorous, objective studies are clear: abortions are not a significant
cause of mental illness.
I am submitting for the record under separate cover some of the excellent
scientific articles, published in the world's most prestigious medical
journals, upon which I base my professional conclusions. These articles speak
for themselves.
The fact that there is no psychiatric syndrome following abortion, and that
the vast majority of women suffer no ill effects, does not mean that there are
no women who are deeply distressed about having had abortions. Some are members
of communities that strongly disapproved of abortion and some were unaware of or
unable to access other options. It was difficult in the past for some of these
women to discuss their negative feelings. Some are now actively organized to
affirm and underscore those feelings and to publish and publicize their
accounts. These accounts, however, are not scientific studies, which cannot rely
on self-selected populations, or those specifically recruited because of
negative feelings.
It's important to understand that an unwanted pregnancy is a major stressor
in a woman's life. According to Burt and Hendrick, research suggests that for
women "who have undergone an elective first-trimester abortion, the strongest
predictor of poor postabortion psychological outcome is a prepregnancy history
of depression." Other factors can include medical or genetic factors (that is,
that the pregnancy is terminated because of medical or genetic risks or
complications), and a feeling that the decision to abort was not freely made.
Again, the literature shows that freely chosen abortion does not result in
postabortion psychopathology. Notably, in an article published in 2000 in the
Archives of General Psychiatry assessing the psychological consequences of
first-trimester abortions, the rate of reported posttraumatic stress disorder in
the subjects was lower than the rate in a general female population matched by
age.
Some articles and statements aimed at the public have gone so far as to claim
the existence of an "abortion trauma syndrome." We are all familiar with
posttraumatic stress disorder, or PTSD, a condition tragically brought to public
attention by the horrific events of September 11, 2001. "Abortion trauma
syndrome" does not exist in the psychiatric literature and is not recognized
as a psychiatric diagnosis.
Let me make a few specific observations about many of the primary arguments
put forward by some who support the nomenclature of "post abortion depression"
and "post abortion psychosis."
§ The terms confuse emotions with psychiatric illnesses. As stated earlier,
the term "depression" can be used for both a passing mood and a disease.
Sadness, grief and regret follow some abortions, for very understandable
reasons. These are not diseases. There is no evidence that women regret deciding
to have abortions more than they regret making other decisions, including having
and raising children, or allowing their babies to be adopted by others. We have
a 50 percent divorce rate in this country. One might conclude that many or most
of those 50 percent regret having gotten married, but as a nation, we are
working to promote marriage, not to make it difficult.
§ Supporters of the would-be created nomenclature do not distinguish women
who terminate unwanted pregnancies from those who have to terminate wanted
pregnancies because of threats to their own health or serious malformations in
their fetuses. Those circumstances can cause terrible disappointment, a sense of
failure, and concern over the possibility of future pregnancies, all of which
are stressors independent of the abortion itself.
§ The arguments overlook an obvious reality: only pregnant women have
abortions. They fail to compare the aftereffects of abortion with the
aftereffects of pregnancy, labor, and childbirth. Full-term pregnancy is
associated with considerably greater medical and psychiatric risk than is
abortion. The incidence of psychiatric illness after abortion is the same or
less than after birth. One study reports that for each 1,000 women in the
population, 1.7 were admitted to a psychiatric inpatient unit for psychosis
after childbirth, and 0.3 were admitted after an abortion.
§ Assertions that abortion causes mental illness do not take into account
the reasons women become pregnant when not intending to have babies, and the
reasons pregnant women decide to have abortions. Pre-existing depression and
other mental illnesses can make it more difficult for women to obtain and use
contraception, to refuse sex with exploitative or abusive partners, and to
insist that sexual partners use condoms. Poverty, past and current abuse,
incest, rape, lack of education, abandonment by partners, and other ongoing
overwhelming responsibilities are in themselves stressors that increase the risk
of mental illness and increase the risk of unintended pregnancy.
§ Likewise, they do not account for the mental health of the woman before
she has an abortion. Pre-existing mental state is the single most powerful
predictor of post-abortion mental state. As we all learned in school,
association does not mean causation. Having a serious mental illness at a given
time may make some women decide that it would not be appropriate to become
mothers at that time. The scientific literature indicates that the best mental
health outcomes prevail when women can make their own decisions and receive
support from loved ones and society whether they decide to continue or terminate
a pregnancy.
§ Some articles I have seen assume that all women who have abortions require
mental health intervention. There is no evidence that women seeking abortions
need counseling or psychological help any more than people facing other medical
procedures. Standard medical practice demands that patients be informed of the
nature of a proposed medical procedure, including its risks, benefits and
alternatives, and that they be allowed to make their own decisions. Of course
this applies to abortion as well. Because the circumstances and decision can be
stressful, most facilities where abortions are performed make formal counseling
a routine part of patient care.
§ Over 30 percent of women in the United States have abortions at some time
in their lives, and very few of these seek or need psychiatric help related to
the procedure - either before or after. Our role, as mental health
professionals, when patients do seek our consultation under those circumstances,
is to help each patient review her own experiences, situation, plan, values, and
beliefs, and make her own decision.
§ There is little attempt made to address the impact of barriers to
abortion, social pressure, and misinformation on the mental health of women who
have abortions. Imagine being in a social milieu where your pregnancy is
stigmatized and abortion is frowned upon, having to make excuses for your
absence from home, work, or school, travel a great distance to have the
procedure, endure a waiting period, perhaps without funds for food or shelter.
Imagine having to face and go through a crowd of demonstrators in order to enter
a medical facility. Finally, imagine being told that the medical procedure you
are about to undergo is very likely to cause mental and physical health problems
-although this is not true. Any stress or trauma caused by these external
factors should not be confused with reactions to the abortion itself.
§ With respect to parental consent issues, one important study involved
adolescents who had negative pregnancy tests with those who were pregnant and
carried to term and those who were pregnant and had terminated the pregnancy.
All three groups had higher levels of anxiety than they showed one or two years
later. But, the interesting result was that two years later, the adolescents who
had abortions had better life outcomes - including school, income, and mental
health - and had a significantly more positive psychological profile, meaning
lower anxiety, higher self-esteem and a greater sense of internal control than
those who delivered and those were not pregnant. As all of us support planned
pregnancies and parenthood and healthy families, we need to better understand
and respond to issues such as postpartum and maternal-/parenting-related
depression so that women who continue their pregnancies are not at greater risk.
§ With respect to health issues, there is much misinformation about medical
sequelae of abortion. Breast cancer is a good example. But here's what the
National Cancer Institute wrote in its May 2003 report, "Abortion,
Miscarriage, and Breast Cancer Risk": "The relationship between induced and
spontaneous abortion and breast cancer risk has been the subject of extensive
research beginning in the late 1950s. Until the mid-1990s, the evidence was
inconsistent. Since then, better-designed studies have been conducted. These
newer studies examined large numbers of women, collected data before breast
cancer was found, and gathered medical history information from medical records
rather than simply from self-reports, thereby generating more reliable findings.
The new studies consistently showed no association between induced and
spontaneous abortions and breast cancer risk."
The most highly regarded and methodologically sound study on the purported
link between abortion and breast cancer - Melbye's "Induced Abortion and
the Risk of Breast Cancer," which appeared in the New England Journal of
Medicine in 1997 - indicates that there is no relationship between induced
abortion and breast cancer. In contrast with most of the studies in this area,
this study contains a large study sample (1.5 million women) and relies on
actual medical records rather than women's recollection, which can be
influenced by fear and the attitudes of their communities.
In February 2003, the National Cancer Institute, a part of the U.S.
Department of Health and Human Services, brought together more than 100 of the
world's leading experts on pregnancy and breast cancer risk. Workshop
participants reviewed existing population-based, clinical, and animal studies on
the relationship between pregnancy and breast cancer risk, which included
studies of induced and spontaneous abortions. This workshop "concluded that
having an abortion does not increase a woman's subsequent risk of developing
breast cancer." The World Health Organization, which conducted its own review
of the subject, came to the same conclusion.
In plain language, there is no medical basis for the claim that abortion
increases the risk of breast cancer. This position, shared by the National
Cancer Institute and the American Cancer Society, is based on a thorough review
of the relevant body of research. Among studies that show abortion to be
associated with a higher incidence of breast cancer, most are unreliable due to
recall bias and other methodological flaws. By contrast, studies that were
designed to avoid such biases show no relationship. It is irresponsible for
politicians to develop public policy that is based upon false medical
allegations.
Conclusion:
Mr. Chairman, as a woman, as a physician, and particularly as a psychiatrist,
I have great sympathy and compassion for all of my patients, women and men,
adults and adolescents, who struggle with mental illnesses. In order to ensure
state of the art treatment, we need to ensure that the scientific process that
is the foundation of our reference for diagnostic criteria - the DSM - is
maintained at the highest levels. Above all else, what the women I treat need is
access to mental health care.
Today, patients in our great country who seek treatment for mental illnesses
all too often find that they lack access to adequate mental health services as a
direct result of the discrimination in insurance coverage for mental disorders.
If this Congress wants to take one single action that would make a world of
difference for all women - for all persons - seeking treatment for mental
disorders, I respectfully suggest that the right action would be to enact a
federal law requiring non-discriminatory coverage of treatment of mental
illnesses as part of all insurance. It is time to end the artificial mind/ body
split in insurance coverage. Well over half the House of Representatives and
more than two-thirds of the Senate have cosponsored legislation to achieve this
result. On behalf of my patients, I respectfully urge you to address the unmet
mental health needs of the nation's women, and men, children and adolescents,
by enacting non-discriminatory coverage of treatment of mental illnesses.
Thank you again for the opportunity to speak with you today. I would be happy
to answer any questions you or other members of the Subcommittee may have.