October 8, 2015 | Blog Post
Meet Owen. Owen is four years old and suffers from polycystic kidney disease (PKD), one of the most common, life-threatening genetic diseases. Doctors diagnosed Owen when his mom, Kate, was just 34 weeks pregnant, at which time she was diagnosed as well. They both currently live relatively healthy lives at the moment, but Owen is already on blood pressure medication even at his young age.
September 18, 2015 | Blog Post
Upton: Hearing, investigation, bills are about ensuring taxpayer dollars support human dignity, respect for all life, and adherence to all federal laws
September 16, 2015 | Blog Post
Children across the nation recently kicked off another school year. And with back to school also marks the ritual of fall athletics for boys and girls alike - football, soccer, field hockey, the list goes on. Many youths play multiple sports year round - sports that have come to define the American athletic experience. In addition to promoting physical activity, some of life’s greatest lessons are learned on the playing field - sportsmanship, perseverance, determination, and teamwork.
August 26, 2015 | Blog Post
More Than a Funding Boost, Experts in Washington and North Carolina Outline the Good Within H.R. 6, the 21st Century Cures Act
August 21, 2015 | Blog Post
How Social Media Helps Raise Awareness, Boost Funding for Rare Diseases
August 20, 2015 | Blog Post
After over a year of conversations and collaboration across the country, the House approved H.R. 6, the 21st Century Cures Act, last month. H.R. 6 was created with the help of thousands of peoples’ input to get better, faster cures and treatments to patients who need them most.